Baby Seen Poking Its tongue Out In An Ultrasound Scan and It's Not Good News

~ Posted on Wednesday, June 1, 2016 at 2:23 PM ~

I came across this article which I must definitely share with you all. For your convenience, I have copied the excerpts from the article here.

"A baby is seen poking its tongue out in an amazing ultrasound scan. But while the image may appear to capture a cheeky pose, Ocea Varney was unable to close her mouth after being born with a congenital defect which meant her tongue was enlarged.

Beckwith Wiedemann Syndrome

Medics diagnosed the potentially fatal condition after she was born and Ocea, now 18-months, has undergone surgery to shrink its size. But the condition was only picked up after the baby's mum Melanie Varney insisted to doctors that was something wrong with her daughter.

 Melanie 28, said: "You could even see Ocea's tongue sticking out on the ultrasound. I remember the technician saying 'look how cute she is, she's sticking her tongue out at you'. "When she was born it was the first thing I noticed - I thought it was cute at first, but it caused some serious complications."

Melanie, from Vancouver, Canada said doctors, nurses and even strangers told her it looked cute, but she was bigger than her twin sister and her oversized tongue caused complications with feeding. After her birth, along with twin sister Indigo, nurses kept her in the NICU for a week to monitor her low glucose levels.

 Melanie added: "The moment I gave birth to Ocea I thought she looked different to my other kids. Obviously she had her tongue sticking out, but she was bigger than her sister. When we were out at the store we would get comments about her tongue poking out - most of them said she was cute but others thought she was being rude.

Beckwith Wiedemann Syndrome

"A couple of times people said it looked like she was thirsty and panting, as if she was some sort of dog. But she was miserable with it - I would try and breast feed her but she just couldn't latch on. It kept me up all night either trying or worrying."

 Melanie claimed after three months of doctors telling her and husband Gabby Mason, 30, it was just a phase, the family resorted to their own research. From Googling her symptoms they came across another girl with a similar story who had been diagnosed with Beckwith Wiedemann Syndrome- a congenital overgrowth disorder.

Despite it being a common condition - affecting one in 14,000 babies worldwide - very few doctors knew about it. Thanks to some further research, Melanie found a specialist in Brisbane, Australia where she was living at the time and made the trip to see him. She said: "As soon as the doctor saw her, he told us it was BWS - it was heart-breaking to hear she had the condition. But after three months, at least we finally had a diagnosis and could start doing something about it. She instantly had blood tests to check whether she had any tumours, which she didn't."

The most common characteristics of BWS are:

  • a large body size,
  • enlarged organs,
  • enlarged tongue,
  • midline abdominal wall defects and
  • neonatal hypoglycaemia.

Melanie and Gabby moved their twins and their two-year-old son Joey back to Canada so they could be closer to family. At just seven months old, Ocea had tongue corrective surgery in Missouri and continues to visit the hospital every six weeks to be screened for tumours.

Beckwith Wiedemann Syndrome

Children with BWS are at an increased risk for developing various types of tumours, particularly liver and kidney tumours, and as many as 20 per cent of babies born with the disorder will develop cancer. Shortly after Ocea's diagnosis, Melanie created the website How Big BWS with the help of her friend Tricia Surles - whose two-year-old daughter Lane also has the condition - to inform and educate families and medical professionals.

They have already arranged a How Big Is Yours? day which encourages people to post selfies of themselves sticking their tongues out. Melanie added: Our goal is to raise awareness about this syndrome. Up to a quarter of sufferers develop cancer so it's important that an early diagnosis is made. We want doctors to recognise BWS and ensure families know there is a support network out there for them. If that means getting people to pull a silly face then that's worth it.""


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With the recent uproar on Harambe, the endangered gorilla who had to be killed in order to save the life of a little boy who fell into the enclosure, this will be my final posting with a compiled list of articles of what I have read so far.

So many what ifs, whys, could haves, would haves...

It's sad that a gorilla had to be killed. Those who have been asking why not tranquilize? Well, it takes time to go into effect with a big sized gorilla and might make the gorilla agitated and provoked it to hurt the child. If it works, it might cause gorilla to faint on top/squashed the child. Too high dose might killed the gorilla instantly. (Source:


There is also explanation from an experienced person who has worked with many gorillas before on why the zookeepers did not use treats or distract the gorilla to get the child back. (Source:


You should also read what has Harambe's previous caretaker said of him as I personally think he knows the gorilla way better than any other experts out there who has never spent time with Harambe (Source:


It's sad that the child can breached through the barriers. The boy went over a stainless steel rail that's a little more than 3 feet high, with vertical bars every eight feet. He made his way through the bushes to the edge of the moat, a distance of approximately 4 feet. From there, he dropped 15 feet to the moat, into a foot and a half of water. (Source:


Those who said the gorilla is dragging the child across the water, how else do you expect a wild animal to move a child? Of course we don't get to see the whole 10 mins video but based on the videos I've seen, the gorilla is protecting the child from the commotion outside. Of course, I am no expert at all so feel free to disagree with my observations.


If the gorilla wants to hurt the child, it would've done so when the child fell into its enclosure, breaching its territory, not taking 10 minutes ordeal to be killed in the end. Apparently gorillas will display signs of attack when they feel threatened or provoked which was not shown when it approached the child. (Source:


Parents, we all know, none of us are perfect. We don't and can't 100% watch after our kiddos all at once, but we can try to minimize any untoward incidents and make sure that while any outing remains a fun and happy one for the family, we also have to be aware of our surroundings as well.


Teach your child about endangered species, zoos, conservation efforts, what to do when you are out and about, dangers and risks etc.


Everyone, a beautiful endangered animal is gone. It will never be brought back to life again. Let's learn from this and double/triple up our watch over our kiddos and others as well, if you happened to observe any children during your outing who are acting very curious and wanting to observe things closer, alert the caretakers of the child.


An article to remind us that social media shaming won't bring back Harambe...

I'm also sharing these articles with you for some real-life events:


A bit more info about the boy's mother and I really pitied those on FB having same names as her. (Source:


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Disney Junior ‘Animate Your Imagination’ Contest

~ Posted on Monday, May 30, 2016 at 7:19 AM ~

I received a mysterious paper bag recently and upon unboxing it, am pleasantly surprised to see the contents of it. Our kiddos were so excited especially when they saw the Disney Junior picture on the paper bag. They obviously know the contents were not meant for mummy LOL

So many cool goodies for our kiddos to use!

I'm a full-time mummy

Now you wonder what is going on? FYI, starting from 12 May 2016 till 12 June 2016, Disney Junior is running an ‘Animate Your Imagination’ contest. What you need to do is to tell them your child’s story based on his/her imagination set around a Pirate, Princess or Space theme, and Disney Junior will animate it! Do note that 3 of the most creative & imaginative of stories submitted will be featured as individually produced animated TV spots on the Disney Junior channel. How cool is it to have your kiddos' artwork being selected and animated and shown on Disney Junior channel huh?

Our kiddos immediately got down to drawing their preferred theme. Our 4.5 year old girl chose princess theme and started drawing herself and her little sister as princesses and then added a tower with Rapunzel in it. Our 7 year old boy on the other hand proceeded to doodle a pirate ship with some pirates inside.

If you want to find out more about the contest, do check out

I'm a full-time mummy

I received no monetary compensation for this review, I was provided with the products in order to facilitate my review. All opinions expressed in this post are my own. Please do your own research when purchasing products, as your opinions may differ from mine.


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